Social Support, Caregiver Burden, Quality of Life and Resilience Among Mothers with Down Syndrome Children in East Kalimantan: A Mixed Method Study
Keywords:
caregiver burden, down syndrome, quality of life, resilience, social supportAbstract
One effect of spending time with children who have Down syndrome is that parents may spend less time interacting with their surroundings. Parents' resilience and quality of life will both be impacted by this behavior. The study sought to ascertain the relationship between quality of life, resilience, carer load, and social support in mothers of children with Down syndrome. This study employed a hybrid methodology, with two phases in February and May of 2023: quantitative and qualitative. In the initial phase, 135 parents with DS children were involved. The qualitative phase involved 8 individuals after that. The quality-of-life variable has a strong correlation; however, it is correlated negatively, meaning that the variable's resilience decreases as quality-of-life increases. However, the variables measuring the burden of caring and social support show a negligible connection with a negative direction. This implies that the resilience variable decreases with increasing stress and increases with social support. Six themes surfaced in the qualitative stage in the meantime. Social support, caregiver burden, and quality of life influence the strengthening of parents who have DS children; therefore, protection service providers can consider parenting using this method as early detection in maintaining the resilience of parents who have DS children.
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